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The Abstract
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> By Stephanie DiCapua Getman, Arnold Ventures
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9/11 was a defining moment in my adult coming of age. I was a 21-year-old college student in Texas, and my sister was driving me to my job at an optometrist’s office when we heard the first surreal news report of a plane hitting the World Trade Center. As soon as we got to the office, we rolled a TV into the waiting room and watched the horror unfold as patients trickled in and stood wide-eyed beside us. Patients stopped trickling in, and we soon closed for the day. We spent hours huddled at friends’ homes, watching the stream of bewildering coverage and waiting for anything to make sense.
I remember sitting in my apartment that night staring at the extra edition of the Austin-American Statesman, bawling my eyes out for the victims and their families, and though I didn’t realize it at the time, for our country and the unknown that might follow.
I went almost straight from that moment to a job in journalism, and watching the war on terror unfold on ink and paper was a defining feature of my newsroom experience. Back then, there was plenty of newsprint to devote to Afghanistan, Iraq, Guantanamo, Abu Ghraib (as a copy editor, it was my job to read every word), and later, to the capture and killing of Osama bin Laden. (I was in charge on the news desk that late Sunday night, and we responded quickly, tearing up the front page for one of the biggest stories of the decade.) Years later, I got to visit the 9/11 memorial site in New York City, and I felt I could have been swallowed whole by that stone abyss. But to press a hand along the inscribed names of those lost that day brought a tangible connection to the grief I felt so many years before.
9/11 altered my worldview and made me fear for what the future might hold in a way that nothing else had — until a global pandemic upended life in 2020, that is. Now my middle age, too, is defined by bearing witness to collective trauma and again to the familiar sequence of events that follows: an immediate surge of national unity, followed by a wave of misinformation, hate, division, and more lives lost.
Only this time I have children. And because of that, I have to hold more hope. I have to teach my children what’s wrong about the world in the hope that they will know and value what is right.
This week I dug out my old newspapers from 20 years ago, and my husband and I talked to our children about what happened on Sept. 11, 2001 and after — and what we knew about why it happened. We told them about the 2,977 Americans who died, the first responders who rushed toward danger, and the acts of sacrifice and solidarity. We also told them about the perpetrators, their motivations, the wars that followed, and the revolting hate crimes that left a generation scarred. We answered their questions truthfully. And we explained why, 20 years later, it’s important to keep talking about 9/11 — for the survivors who are still healing physically and mentally, the brave souls who gave their lives to help others that day, the military members who answered the call to serve and their families, and the many Americans who are still made to feel unwelcome in their own home. And because it continues to reshape the way we view ourselves, each other, our government, and the trajectory of our country.
I will join those commemorating this anniversary with acts of kindness toward strangers, a way to “pay it forward,” “shine a light,” and honor those who died.
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Biden’s Prescription for Rx Reform
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By Rhiannon Meyers Collette, Communications Manager
The Biden Administration late Thursday unveiled its long-awaited blueprint for lowering the price of prescription drugs, and the 29-page document lays out an expansive strategy for increasing competition and continuing to promote innovation while lessening the financial strain on patients, families, and taxpayers.
What's Happening: Congress has been debating the contours of drug pricing reform, including proposals that would allow Medicare to negotiate the price of drugs and the implementation of an inflation rebate requiring drugmakers to pay back the difference when they hike prices beyond inflation. In the plan released Thursday, the administration threw its support behind these ideas — adding its endorsement at a pivotal moment in the debate. It also endorsed several administrative actions that the U.S. Department of Health and Human Services could deploy to lower drug prices, including testing models to better align payment with the clinical value the drug provides to patients.
Why it Matters: We’ve said it before and we’ll say it again — prescription drugs don’t work if you can’t afford them. And right now, an estimated one in every three Americans reports not taking their drugs because of cost. Despite pharma’s fear-mongering about drug pricing reform, the reality is that we can lower drug prices and increase competition while maintaining financial incentives to drive true innovation. We look forward to seeing administrative momentum on the actions outlined in the plan and will continue to support legislative policies that would deliver meaningful action to reduce the price of prescription drugs.
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A 'Holistic' Approach
to Public Defense
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By Evan Mintz, Communications Manager
Defense attorneys typically work for their clients from the beginning of the case until its disposition — but not in the Harris County Public Defender’s Office. Deep in the heart of Texas, a newly created holistic services division helps clients with needs beyond immediate legal representation, such as employment, drug treatment, and mental health services. “We’re a big office that does many different things. And that’s a bit unusual, at least in the scope of public defender offices in the country,” Alex Bunin, the chief public defender, said in an interview with the National Partnership for Pretrial Justice.
Why It Matters: Just because someone’s case is resolved doesn’t mean the root problem that landed them in court has been solved. “If you don’t have a place to live, that’s why you’re going to get caught for trespassing,” Bunin said.
Holistic representation helps to address these underlying issues that can keep people cycling through the criminal justice system. The idea originated from the Bronx Defenders, a nonprofit public defender organization created in the 1990s. Research by the RAND Corporation has found that holistic defense results in better outcomes, including reduced rates of incarceration and saving taxpayer dollars without risking community safety.
Other Innovations: The Harris County Public Defender’s Office also practices “participatory defense,” which works to include the families and communities of people involved in the justice system in the defense work. “A lot of times we will encourage families of clients and clients who are out to get together so they can exchange information with each other. And when they see things that are wrong in the system, they are able to organize and make their voices heard.” Bunin said.
Read the Q&A >
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Improving Care
for the Most Vulnerable
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By Rhiannon Meyers Collette, Communications Manager
The Biden Administration's proposal to infuse $400 billion to expand Medicaid home and community-based services has been widely cheered among those who see this as an unprecedented opportunity to better care for people who are elderly and/or disabled. These services — which include help with bathing, dressing, meal prep and medication management — are intended to allow people to continue living in their homes and communities (rather than in an institution).
What’s Happening: As policymakers consider plans for strengthening home and community-based services, it's critically important that they consider the impact on people who are dually eligible for Medicare and Medicaid. In a new blog, AV's Arielle Mir and Amy Abdnor teamed up with Allison Rizer of ATI Advisory to make the case that an investment into HCBS presents an opportunity to build meaningful strategies to integrate Medicare and Medicaid to deliver better care and outcomes for a vulnerable group of people.
Why it Matters: Integrated care has demonstrated an ability to improve outcomes and lower costs — expanding Medicaid HCBS without taking Medicare into consideration could exacerbate the fragmentation of care that already plagues dual-eligible beneficiaries. "The ultimate success of this investment to prevent institutionalization, to meet beneficiary needs, and to enhance wellness will be determined by integration with medical care and more specifically, Medicare," Mir, Abdnor and Rizer write. "Expanding HCBS won’t work if it’s done in a vacuum."
Read the story >
Related: We want to better understand the experiences and perspectives of people who are dually eligible for Medicare and Medicaid, which is why we have issued a request for information to gather feedback on what matters most on integrated care models. We are accepting responses until Thursday, Sept. 16.
Related: Read this very personal essay in support of President Biden’s proposed $400 billion for home- and community-based care: “Home care is literally keeping me alive. But across the country, almost a million children, adults and seniors with disabilities sit on waiting lists for Medicaid’s home- and community-based care, in danger of being removed from their homes and sent to live in institutions.”
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Who's Maximizing Opportunity
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By Amanda Moderson-Kox, Director of Evidence-Based Policy
An 11-year follow-up report on Project QUEST shows it is the only workforce training program with compelling evidence of sizable earnings impacts sustained more than 10 years after program entry. Project QUEST provides comprehensive support and resources to help low-income adults enroll full-time in occupational training programs at local community colleges, complete the training, pass certification exams, and enter well-paying careers in strong sectors of the local economy in San Antonio.
What’s New: This update on the well-conducted randomized controlled trial of the project shows that QUEST continued to increase annual earnings by 15-20% (an average of $5,000 per year) in each of the ninth, 10th, and 11th years after program entry. Importantly, sample members were largely female (88%), Latinx (74%), and, on average, were 30 years of age and earned roughly $13,000 in the year prior to program entry.
Why it Matters: The study’s results clearly demonstrate that Project QUEST has made a meaningful and lasting difference in participants’ lives. Additionally, the program produced average earnings gains over the 11-year follow-up period that far exceeded the estimated per-participant cost of approximately $12,500, suggesting the program’s benefits outweigh its costs.*
Bottom Line: While we know we keep saying this, we can’t say it enough: This is why the proposed $9 billion Retention and Completion Fund, part of the Build Back Better Act, is game-changing. It is this kind of program — with credible evidence of life-changing results — that will benefit from expanded federal funding.
Read the report >
*While these findings are very impressive, we believe they need to be replicated in a second RCT in order to both confirm these results and establish that the program would produce similar effects if implemented in another setting.
Related: We applaud the $9 billion Retention and Completion Fund: Read our statement
Related: We are profiling students whose lives have been transformed by evidence-based college completion programs. Read Part 1 here and Part 2 here.
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Criminal Justice
Health
- In its bid to stop legislation that would make drugs more affordable, Big Pharma argues that lower drug prices for Americans are “too good to be true,” invoking its role in vaccine development and recycling the lie that government intervention would stifle innovation.
- Dr. Anita Gupta writes in Forbes on actions we can take now to mitigate the opioid crisis during the pandemic, including expanding equitable access to evidence-based treatment.
Also...
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“Twenty Years Later: The Women of 9/11,” a gripping retelling of the attack on America through the eyes of a diverse group of women who share their stories for the first time in 20 years. ABC’s Robin Roberts sits down with a New York City journalist who was on the ground, a firefighter and police officer on the front lines, a retired U.S. Army colonel who was working at the Pentagon, a bystander critically injured by debris, and a forensic anthropologist who helped families identify their loved ones. She also interviews Genelle Guzman, who worked at the North Tower and was the last person pulled alive from the rubble. Their recollections are both painful and inspiring, and it is difficult to watch the scenes of destruction and despair all over again. But by the end, hope emerges in their stories of strength and resilience. “I think that doing the anniversary every year, it brings a lot of comfort and peace to the families,” Guzman says. “It’s something that will never go away. And it shouldn’t.” It’s now streaming on Hulu.
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- Actor Michael K. Williams, who died this week, was best known for his role on “The Wire.” But offscreen he was an advocate for criminal justice reform, serving as an ACLU ambassador for ending mass incarceration and working with The Marshall Project to narrate a documentary on prison conditions and upend the narrative around the system. Now, a bill to reduce incarceration rates in New York will be named for him.
- I was a little too old for “Blue’s Clues,” but I watched it with my young cousin. Beloved host Steve Burns had a touching message this week for his millennial viewers about why he left the show abruptly, striking a poignant chord with many of his now grown-up fans.
- Nine-year-old Adhara Pérez Sánchez has an IQ higher than Stephen Hawking and Albert Einstein, is pursuing two engineering degrees, and hopes to go to Mars someday. She is also using her platform to inspire other children on the autism spectrum to follow their dreams.
- Breonna Taylor’s portrait is now in the Smithsonian as part of the National Museum of African American History and Culture’s new exhibition, “Reckoning: Protest. Defiance. Resilience,” opening today.
- It’s finally here: Grammy-winner Kacey Musgraves dropped her new album, "star-crossed" today. It's all about heartbreak, and it’s all I could have hoped for. Check out the accompanying film on Paramount+.
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Have an evidence-based week,
– Stephanie
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Stephanie DiCapua Getman develops and executes Arnold Ventures' digital communications strategy with a focus on multimedia storytelling and audience engagement and oversees daily editorial operations and design.
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